About 2 years ago I lost approximately 50% of my hair and the quality went from thick, strong, straight, healthy hair to thin, weak, frizzy, kinky dry hair that not only sheds but breaks and flakes off pieces at my ends. My skin has become very dry and my nails have become weak also. I went to an endocronologist that put me on 125mg spironolactone which had been increased slowly over a period of a year. He also decided he wanted to give me a layered approach by adding on 2 other medications over a year, one was Glumetza ER 500mg twice a day and Actos 15mg once a day. He said my DHEA was a little high and that these drugs used for off label treatment would help grow my hair back. My hair stopped falling out and a little grew back but the quality of my hair was still very sickly almost like someone on a chemo drug. I was concerned about my liver and stopped taking the drugs, unfortunately my hair started shedding again.
Honestly, for female pattern baldness (what I have) I don’t think there really is any effective treatment — the only hope is learning to cope psychologically. (Just my humble opinion) So I don’t totally “hate” him for not being able to help me medically regarding the hair — but he was such a let down. I really expected more. (he’s an excellent dermatologist, for skin things at least)

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Testosterone replacement is becoming popular for men. Cotsarelis warns that this may accelerate hair loss. Propecia might help -- but because it prevents testosterone breakdown, it might affect the dose of male hormone replacement therapy. Cotsarelis warns men taking both Propecia and testosterone replacement to make sure their doctor carefully monitors their testosterone levels.
The other main hair-loss treatment that was recommended by all four dermatologists I interviewed is finasteride, often called by its brand name Propecia. This FDA-approved medication is only available with a prescription, but these days, it’s found as a generic and ordered online after a virtual consultation, through start-ups like Hims, Keeps, and Lemonaid.
So far, I’ve only been on the Propecia for about three weeks. I don’t notice any side-effects thus far. I am taking 2.5 mg of Proscar, to be exact. I feel good and have not noticed any difference in my hair. I continue to lose about 20 hairs when I shower and brush it each day. That may not sound like a lot but I have already lost so much of my hair, that I think that represents more hair loss than it sounds. At least it is stable for now…I thank GOD that it is not getting worse. I DO have re-growth but it is fine and “wispy” as you said. It is not the same as the rest of my “normal” hair but hey, at least some of it is growing back in. Slowly and finer. That seems to support the AGA diagnosis. The thing that really drives me crazy is that I still don’t know WHY the TE started in the first place. The TE unmasked the AGA, but why the damn TE and what from here? Anyway….I digress and obsses!

I’m a dermatologist and am more interested in telogen effluvium these days because I have it bad–and this time it’s not because I just had a baby. I’m learning more about the gut-skin-hair connection and am suspicious that it has to do with the bacterial flora in your gut. You can learn more about changing your gut flora at BodyEcology.com. Her book is intense but I’ve decided to give it a try after recommending it and seeing it work so well with acne patients.


Im new here and suffer from hair loss. I’m 25 and have developed bald spots about 2 yrs ago back in 09. On the side of my head near my temple areas. I hide the bald spots with headbands every chance i have because i feel as if people just look directly there…im self concious about myself because about a year ago i had a head full of hair and now i dont..I want to seek help just doesnt know where to begin…im currently takin biotin and keep hope alive…
Age-onset thinning, or “miniaturization,” refers to a progressive decrease of the hair shaft’s diameter and length. This happens at least in part because of androgens like dihydrotestosterone (or DHT), a derivative of the male hormone testosterone that causes hair follicles to literally shrink in diameter. This type of hair thinning is referred to as androgenic alopecia, and it occurs in an equal pattern all over the scalp. However, pregnancy, ovarian cysts, medications, emotional or physical shock, and birth control pills can all affect hormone levels, making it complicated to pinpoint the reason for hair loss. For example, polycystic ovarian disease can exacerbate androgens and manifest as thinning, in which case you could treat the condition and fix hair loss. Get your hormone levels checked to see if an underlying health issue is the root cause.
SOURCES: George Cotsarelis, MD, director, Hair and Scalp Clinic, University of Pennsylvania School of Medicine, Philadelphia. Andrew Kaufman, MD, assistant professor, department of dermatology, University of California, Los Angeles; medical director, Center for Dermatology Care, Thousand Oaks, Calif. Tom Barrows, PhD, director of product development, Aderans Research Institute Inc., Atlanta. Cotsarelis, G. and Millar, S.E. Trends in Molecular Medicine, July 2001; vol 7: pp 293-301. American Society for Dermatologic Surgery web site. American Academy of Facial and Reconstructive Plastic Surgery web site. American Hair Loss Council web site. Springer, K. American Family Physician, July 1, 2003; vol 68: pp 93-102. Hair Loss Help web site, "Interview with Dr. Ken Washenik from Bosley." Fuchs, E. Developmental Cell, July 2001: vol 1: pp 13-25.
With those pinned down, it wasn’t hard to determine which don’t actually work. Pretty much all the “active” ingredients listed in ineffective treatments — from biotin and zinc to emu oil and saw palmetto — have never been proven, and are instead marketed based on logical-seeming correlations. It would make sense that biotin, a B vitamin readily found in hair, skin, and nails, could help hair grow more quickly. And caffeine is a stimulant that works in coffee, so rubbing some on your scalp might wake some of those sleepy follicles… right?
I also have been experiencing hair loss for the last 6 years and it is truly devastating. It is so hard to get up in the morning and go to work I feel so embarrassed, insecure and feel like every one around me is just staring at my head. I also just came across this website and I feel every one’s pain. For a woman, it is such a terrible thing to deal with. I will pray that we can all find the solution to this terrible situation. I live in Houston, TX and will be making an appointment with an endocrinologist soon.
Loose anagen syndrome, which most commonly presents in young children, occurs when hair that is not firmly rooted in the follicle can be pulled out easily. Most of the time, hair falls out after it has reached an arbitrary maximum length. Children with loose anagen syndrome often cannot grow hair beyond a relatively short length. The condition more commonly affects girls with blond or brown hair.
Hair is made up of the hair follicle (a pocket in the skin that anchors each hair) and the shaft (the visible fiber above the scalp). In the hair bulb, located at the base of the follicle, cells divide and grow to produce the hair shaft, which is made from a protein called keratin. Papilla that surround the bulb contain tiny blood vessels that nourish the hair follicles and deliver hormones to regulate the growth and structure of the hair.
My hopes and prayers are for all of us… that somewhere a doctor, an organic chemist, SOMEONE… ANYONE… will care enough to actually research this. Thank you, all of you, for your tears, suggestions and sharing. I WILL NOT WEAR A WIG… WHAT LIES BEHIND US, WHAT LIES AHEAD OF US, PALES IN COMPARISON TO WHAT IS INSIDE OF US. WE ARE STRONG, VIBRANT… WE WILL PREVAIL.

That meant new products like Hims and Keeps were out.Hims and Keeps are relatively new companies that allow you to set up a subscription for hair loss treatments. Both offer finasteride (after an online consultation with a doctor) or 5 percent minoxidil. However, their minoxidil solutions contain propylene glycol, so we cut them from consideration.
Hey, lady. I am glad for you that you got the extensions removed if it makes you feel better, but if it doesn’t then you should get them put back in. I understand wanting your husband to feel you are attractive, etc. but if he did not like them but you did…maybe you should talk to him and tell him how much better they made you feel about your appearance? A thought anyway. I am totally single so don’t have anyone to please but myself but I think in our hair loss, we have to make ourselves feel better first. That produces an effect that trickles down to everyone important to us in our lives. I’m sure your husband thinks you look gorgeous either way but you have to do what makes YOU feel gorgeous!
Thank you all for sharing your stories. I have various health issues including arthritis of the spine, GI problem and Poly ovarian cyst syndrom… I had exetremely thick and full hair all my life 5yrs ago my hair started falling out in huge clumps all day long so much so that I leave huge hair balls under my desk at work… I also have sjordren syn. When I first went to my family doctor he told me it was because of my high stress job… I said that I did research on the internet and that all my conditions were supposed to be linked to hairloss he was mad and said why did I come to him if I had all the answers… I have been to 2 dermos who said its nothing. I went to the only endocrinologist in a 100 plus mile radius of my home who was taking new patients who said that there is nothing wrong with me and that if I cared about my health as much as my hair loss I would loss weight ( I know I not skinny but…) he did not even LOOK at my tests when he came in he said we didnt get your urine samples results back. I said that I went 3 weeks ago. He then said oh here they are… but did not even look at them before his fat comment… since I do not want to swear on here I will just say “jerk”. I cried the whole way home. I went back to my family doc and saw the PA because it seems he is sick of me. Again among other sympt. my hairloss is getting worse… the PA’s answer “yea that’s pretty bad.” (wow I’m paying for this advice ) She brought me back samples and said this should help. it was an anti depressant….I said I am not depressed I am upset that everyone can acknowledge my sympt. but no one seems to be able to help my. My arthritis doctor ran tests only to shut me up and said my folate levels were fine so it had to be stress… not their problem. I came from my 3rd gyno today who said now since my cysts were gone and my test. levels were normal that I can’t have children anyhow then I shouldn’t worry about hairloss… no advice whatsoever about the diease less than 5 mins. $400.00 40 mile trip another day of work gone. This doc. did even think I should be concerned that I cannot get preg. or my pain (so it does not surprise me about the hairloss) I said is there anything else that can cause my hair to fall out besides test. levels he said not gyno related…. He said if you like we can test you again in three more months. I would give up but I know it is not something just in my head or even just a cosmetic problem…. I feel sometimes they just want to milk my insurance dry my running the wrong test so they can keep charge you for the expensive stuff instead of working on a cure for you. The worst maybe is that my family and friends are also sick of me and think I just like attention. From your post I looks like a lot of have similar health and experiences. Although I am very upset I am glad be able to vent to people who also my have be treated like hypocons… and armed me will more info.
Lisa, don’t know if you are out there and reading this but I called my dermatology office today. I have worked with them since about 2003/2004 when I had severe cystic acne (it is about as bad as hair loss in dealing with it) and together the nurse and I were successful. I have hope, I got in to see her tomorrow and I’m taking all the meds/vitamins I am taking. Call Arizona Skin & Cancer Institute, they are in Chandler AZ right by Chandler Regional. I’ve been in tears all day because a clump came out. I thank God for my beautiful children who were there for me through the acne and my mom. You just listen to me talk about what I am going through. Getting through work was hard today. Anyway, Lisa call them and try to get in. I don’t know if I will have success but I’ve done a lot a research and I know what to ask. I did look up symptoms of protein deficiency – strange I had great hair in October 07 and my nails were really hard and now they are brittle and breaking and my hair is falling, I also went through a couple of weeks of this werid swelling of my arms, legs, feet, hands in April. And have been constipated, and my running isn’t giving me the usual firm legs, all signs of not enough protein. Maybe I’m grasping at straws but anyway…hope you are doing ok.
Minoxidil should be applied twice daily, and one year of use is recommended before assessing its efficacy.6,7 Women also may benefit from adjunctive treatments such as estrogen (hormone replacement or oral contraceptives) or spironolactone (Aldactone). In men, minoxidil may work better in areas with higher concentrations of miniaturized hairs, and its efficacy may be increased by the synergistic use of once-daily tretinoin (Retin-A) applied at separate times during the day.6,8 Minoxidil does not work on completely bald areas and has relatively few side effects; a dosage of 2 mL per day of a 2-percent solution costs about $10.00 to $12.50 per month.
The main symptom of alopecia areata is hair loss. Hair usually falls out in small patches on the scalp. These patches are often several centimeters or less. Hair loss might also occur on other parts of the face, like the eyebrows, eyelashes, and beard, as well as other parts of the body. Some people lose hair in a few places. Others lose it in a lot of spots.
I have had alopecia universalis for 12 years now. It was very difficult in the beginning when my hair began to fall out. I was in college and devastated because I thought my life was over. I have now grown to accept myself and the way I look now. I know I would not be who I am today without this having happened, and I really like me! It does get better, but it is a process. A good support system and love from family and friends gets you through. Good luck to you all on your journey.
With those pinned down, it wasn’t hard to determine which don’t actually work. Pretty much all the “active” ingredients listed in ineffective treatments — from biotin and zinc to emu oil and saw palmetto — have never been proven, and are instead marketed based on logical-seeming correlations. It would make sense that biotin, a B vitamin readily found in hair, skin, and nails, could help hair grow more quickly. And caffeine is a stimulant that works in coffee, so rubbing some on your scalp might wake some of those sleepy follicles… right?
Yes, absolutely. There are certain hair treatments, as well as styles, that can trigger hair loss: tight braids, pigtails, hair weaves, and cornrows can all trigger temporary hair loss called traction alopecia. Chemical relaxers; overuse of chemical colorants; hot-oil treatments; overuse of flat irons, curling irons, or even hot blow-dryers can all damage hair at the root, causing it to fall out. If you are experiencing hair loss, its best to schedule an appointment with our office so that we can help diagnose your issue and determine how best to your hair loss.
I’m going to see an endocrinologist, a trichologist, a hematologist and a gastroenterologist and maybe this Dr. Redmond. I’m done with ‘hair loss experts’ pushing cosmetic surgery and trying the all around approach. My insurance is crap, but….Anyway, thanks all for your stories and knowing I’m not alone in hair loss and the fight against disinterested medical establishment. xxx
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