I had embolization and an angiogram for an AVM on my jaw. I was told there would be some hair loss because of the radiation (The size of a quarter). Well I have lost all but 1/3 of my hair left …not the area of a quarter! Has anyone ever had this happen? My doctor says the hair should grow back, but it has been three months and it is still coming out and no new growth. I don’t know what to do! Any suggestion? As with many women my hair was a part of my identity. I am not bragging but people remember me as the girl with all the hair. I realize we are more than our hair, but it makes me so sad!
I know that Planned Parenthood offers thyroid screening, should I try there to get mine checked to see if this is why my hair is thinning? I have no health insurance, I’m unemployed, and between feeling depressed and just incredibly tired, I don’t know how I can get a job and wait until benefits kick in to actually see a doctor. It’s so depressing. I always had fine hair, but a lot of it. It was shiny, mostly straight with a little wave, but now it’s just, what I consider to be, disgusting. I hate how my hair looks and it’s gotten to the point that I’m so stressed out I don’t even want to eat anymore. Which sounds awful, but I eat and I feel entirely not hungry and almost nauseated. I think it’s the tremendous stress. I’m afraid to call Planned Parenthood because part of me doesn’t want to know if there’s nothing that can be done, but do you think they can test for PCOS as well? My periods were always normal. I got it when I was 12, about 3 months before I turned 13, and they were like clockwork. Then when I was about 15/16, my grandparents died and that was a major shock and I got a few grey/white hairs, still not thinning/balding. Then when I was 17, I dyed my hair almost black because I was depressed, but hated it, tried to remove the color with over the counter stuff, and my hair turned into straw and was brassy orange. I ended up perming it at 18 because it was so frizzy and a friend convinced me that it’d be easier to just wear it curly than to keep blow drying it straight only to have it fuzz up/frizz up. This is probably tmi, and I’m sorry, but I need to vent. I was raped at 18 (a virgin) by 3 boys. I started eating a bunch of junk and withdrawing. I was always what I consider a chunky girl, but my weight has ballooned up since then. I have so much stress and the stress of this is exascerbating my hair loss I think, but I also fear I might have either hypothyroidism or PCOS, or potentially both. I’m even fearful I could have Cushings. The problem is that I don’t have health insurance anymore and any job I get will take about 3 months to kick in as far as benefits go. I just feel like it’s so unfair. Of course life isn’t fair, but still, it’s like this never ending circle for me. I can’t get to the doctor and get help without a job, but I don’t feel I can actually function without going to the doctor because I feel lousy. Oh, and my periods are all out of whack. I bleed monthly, but it’s like ceaseless. It’s so depressing knowing something is wrong, and having no hope to fix it. Thanks for listening.
Low-level laser light brushes, combs and other devices which are FDA-cleared for both men and women are available without a prescription. Although it’s not clear how the devices work, it’s thought to “stimulate the hair follicles’ energy cells to be more active,” Francis said. They’re also foolproof, telling you when and how far to move the device and they even automatically shut off.
What I hate most is how I feel about myself. As others have shared, I don’t want to wash or fix my hair any more than I have to for fear of lossing even more hair, thus I don’t want to leave the house. I also don’t like that most health care professionals give you a standard excuse for the hair loss: you’re getting older, hair thins; it’s hereditary; or the worst one..it’s due to stress! I wasn’t stressed until I pick a clump of hair from the shower drain or my hairbrush daily!
Also, re: the Proscar, I think that it may already be helping some as I think my shedding may be tapering off a bit more. I am losing a few less hairs Per day now. Maybe? I don’t know, but I am trying to stay positive!! I have no real regrowth. Just wisps, extremely fine hair, almost hard to see. Kind of transparent. I am not expecting miracles, but trust me…. THe moment I feel I have any true results to share with you girls, I will definitely be posting them! There aren’t many success stories out here. We need more. I guess people don’t come out here as much if they are experiencing good things w their hair?
again, she found my testosterone level a tad high, in the 50’s. she initially wanted me to start on both metformin and spironolactone. i am not a diabetic, but apparently the metformin stops testosterone production and the spironolactone inhibits testosterone from absorbing…or something to that nature. she didn’t come out and say that my elevated level was the cause of my hair loss, but she did say elevated levels “could” be the culprit, but that either way she wanted my levels to normalize. makes sense. she listened to me patiently and spent a good amount of time, medically, with me. she ordered labs: not anemic, good iron, good protein, no thyroid problems. the metformin made me sick. she told me to start slowly with each med and that she’d increase it with time, based on my body’s reaction. with spiro you need to have your potassium checked within two weeks of starting it. sadly, i didn’t follow through with the meds because they made me feel so sick and i couldn’t go back to her since i lost my insurance. but after reading all of these posts, i have scheduled another appt with her in a few weeks and will ask her to put me on spiro only and will see if this helps.
Laser devices: Brushes, combs, and other hand-held devices that emit laser light might stimulate hair growth. These devices might make hair look more youthful in some people. Because the FDA classifies these products as medical devices, the products do not undergo the rigorous testing that medicines undergo. The long-term effectiveness and safety for these devices are not known.
What a helpful website, thank you ladies for sharing. I am 55 and am loosing hair by handfuls when I shampoo. I have been using Minoxodil extra strength for about 5 years and it was helping but not anymore. I also have been taking Nioxin hair vitamins and they helped for the first 3 years but not now. I am going to check out Dr Redmond like several of you recommended and head to Sallys for hair extensions also. Does anyone know of a good Dermotologist or Endo Dr. in Humble or Kingwood Tx area? Karen
Susan – I am horrified to read that two of your doctors actually made fun of you… oh my gosh that is awful! I’m so sorry you had to go through that. I am also surprised that your doctors wouldn’t do any bloodwork other than thyroid. What City/ State do you live in? Maybe someone can recommend a doctor in your area that would be more helpful. While many times bloodwork results end up coming back normal there is that possibility that your results would point to something that may be the cause of your hair loss, especially since you say you have no genetic hereditary hair loss in your family. I know you stated your hair is still falling out, but do you see any results from the propecia and mens rogaine? When did your hair loss start?
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How many of us are out there… feeling alone and pretending to not be ashamed. As a child, I had so much hair that my mother used a thinning shears on my locks. In high school I had a glorious mane, cut into a ‘Gypsy’… what great pictures. By my mid-20’s I had to cut my hair short because it was so thin that it wouldn’t hold a style. Was diagnosed with PCOS and told that this syndrome, combined with heredity, caused my hair loss.
Current evidence suggests that alopecia areata is caused by an abnormality in the immune system that damages hair follicles. This particular abnormality leads to autoimmunity, a misguided immune system that tends to attack its own body. As a result, the immune system attacks particular tissues of the body. In alopecia areata, for unknown reasons, the body's own immune system attacks the hair follicles and disrupts normal hair formation. Biopsies of affected skin show immune lymphocytes penetrating into the hair bulb of the hair follicles. Alopecia areata is occasionally associated with other autoimmune conditions such as thyroid disease, vitiligo, lupus, rheumatoid arthritis, and ulcerative colitis. The diagnosis or treatment of these diseases is unlikely to affect the course of alopecia areata. Sometimes, alopecia areata occurs within family members, suggesting a role of genes.
Dr. Williams is also the primary investigator in a National Institute of Health (NIH) approved IRB study in regenerative medical treatment procedures with stem cell/stromal therapy for hair loss in androgenetic alopecia. A new study treating scaring and autoimmune (Alopecia Areata) alopecia is expected in 2017. Dr. Williams believes the foundations of health and hair restoration are founded on prevention and wellness. His primary practice is hair restoration surgery in Orange County, and he is involved in teaching medical students and residents from various medical training programs in northern and southern California. He is on the clinical teaching faculty of Western University of Health Science in Pomona, California; and Touro University College of Osteopathic Medicine in San Francisco, California, and Chapman University new Health Science teaching facilities.
I got really sick at the age 40, 2 years after my second child was born,I started losing weight,I went from 54kg down to 47kg,my skin was splitting on the backs of my legs,both my hands,I had blisters up my arms ,on the tops of my feet,migraines that would have me vomiting none stop for ten hours,then only to sleep for 2 days to recover,no doctors were interested,I saw 8 and they all wanted me on anxiety medication because I was going through a break up that was there answer to the way I was feeling.No one wanted to listen to me.Almost feeling like