I also have been experiencing hair loss for the last 6 years and it is truly devastating. It is so hard to get up in the morning and go to work I feel so embarrassed, insecure and feel like every one around me is just staring at my head. I also just came across this website and I feel every one’s pain. For a woman, it is such a terrible thing to deal with. I will pray that we can all find the solution to this terrible situation. I live in Houston, TX and will be making an appointment with an endocrinologist soon.
Each day the scalp hair grows approximately 0.35 mm (6 inches per year), while the scalp sheds approximately 100 hairs per day, and more with shampooing.1 Because each follicle passes independently through the three stages of growth, the normal process of hair loss usually is unnoticeable. At any one time, approximately 85 to 90 percent of scalp follicles are in the anagen phase of hair growth. Follicles remain in this phase for an average of three years (range, two to six years).1 The transitional, or catagen, phase of follicular regression follows, usually affecting 2 to 3 percent of hair follicles. Finally, the telogen phase occurs, during which 10 to 15 percent of hair follicles undergo a rest period for about three months. At the conclusion of this phase, the inactive or dead hair is ejected from the skin, leaving a solid, hard, white nodule at its proximal shaft.2 The cycle is then repeated.
Trying to figure out exactly what is causing your hair loss is going to require a little detective work on the part of your physician. Several lab tests are going to need to be done. I’ll make sure to make another post this week about the standard lab tests that should be ordered to start the process. Hopefully you don’t have to bring the list to the doctors office, he/she should know already. I get concerned when women have to bring a list of tests that should be ordered to their doctor. My feeling is that if they don’t know what to order then how are they going to be able to accurately read the results. But… a good doctor is a good doctor, and if you have one that really cares and takes a strong interest in your hair loss with a willingness to work with you in finding the cause then great.
Oops forgot to mention also went to Dermatologist who said it is probably just stress related but I really don’t stress ever. I am going back for a scalp biopsy just to be sure nothing going on there. I did lose 12 kg over a 15 week period last year (ending about May – hair loss started in July) but it was done properly eating well and just increasing my exercise level so not sure if this is related other than that I am totally lost as to why I am BALD.
I am scared to find out whether I have PCOS…I was hoping to find out about my insulin as I sensed a major blood sugar problem for years, but I took the news surprisingly poorly. I’m more stressed than before and am terribly depressed. The doctor, by the way, had zero to say about it all. Nothing. His words “Ask your gynocologist, I am just a lowly MD.” [gasp]
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^ Lenane P, Pope E, Krafchik B (February 2005). "Congenital alopecia areata". Journal of the American Academy of Dermatology (Case Reports. Review). 52 (2 Suppl 1): 8–11. doi:10.1016/j.jaad.2004.06.024. PMID 15692503. We believe AA should be classified not only as an acquired but also a congenital form of nonscarring hair loss. It may well be more common than is thought because of lack of recognition
My hopes and prayers are for all of us… that somewhere a doctor, an organic chemist, SOMEONE… ANYONE… will care enough to actually research this. Thank you, all of you, for your tears, suggestions and sharing. I WILL NOT WEAR A WIG… WHAT LIES BEHIND US, WHAT LIES AHEAD OF US, PALES IN COMPARISON TO WHAT IS INSIDE OF US. WE ARE STRONG, VIBRANT… WE WILL PREVAIL.
I also suspect, as you suggest, that the trichodynia is a result of rapid hair loss. I share your frustrations with how very little we dermatologists know on the subject. The only observational study on Trichodynia and chronic telogen effluvium involved only 8 patients. Only one of those eight went on to have androgenetic, permanent hair loss. The numbers followed is pathetic!
Eyebrows unfortunately is a different ball game, that is skin transplantation from skin at the back of your head where your hair grows. This means that you would have to trim your eyebrows for the rest of your life. The cost for this surgical treatment is $5000, and again covered by Care Credit. Not sure if I want to do this. I am very light blond. I may just consider permanent eye brow tatoe. I have seen beautiful work – cost around $500.
My dermatologist recently prescribed 100 mg spironolactone for a month and told me to increase the dose to 200 mg after that. He also told me to use Rogaine for men. The Rogaine instructs that it not be used in the front of the scalp (where a lot of my hair loss is) but to only use it on the crown of the head. Can I safetly use it in front? Also, how do you deal w/ putting foam on your head 2 xs a day? My hair is thin with no body. If I add foam I’ll need to restyle it. Am I missing something? I don’t mind taking a pill but the Rogaine has me freaked so I haven’t started it. Any suggestions? I’m having a hard time thinking of using Rogaine the rest of my life.
I live in Orlando. I understand your panic. How old are you? Are you in menopause or peri or is it purely hair loss not horome related? I have been to a dermatologist I traveled 2 hours to another city. I’m like you, desperate and going from doctor to doctor. It’s a nightmare and I’m losing more hair all the time. Where are you losing your hair? on top? Is it diffuse? I feel like I’ve wasted so much time. I felt in November it was menopause related. I went in Menopause early 40s. wasted months on HRT since January and hair worse on top. I felt like I was in a nightmare and nobody understands. You truly don’t want to leave the house. I went to derm specializing in hair loss. He did biopsies. Female pattern hair loss on top. Folicullitis in back. I had even had hair fall out around nape of neck. But he just basically said nothing. I was waiting for biopsy to come back and more blood work and I said can’t I take something. He said you’re not going to lose any in two weeks. I’m like are you kidding me? every week is another nightmare. Anyway he says take spiro 50 mgs, use Rogaine. Even I know from these blogs you need to take 100 to 200 for female hair loss. Basically I go back and he says hair transplant. Did I mention he does hair transplants. So he does nothing beyond diagnosis except offer hair transplant. I’m like My hair is falling out all over. I need to get it stabilized first. sorry I’m rambling. I’m using rogaine foam. It makes me feel good to use it as if I’m doing something. Been on a month almost. Now just went on finasteride, but jury is out if that will help. But even that I asked for from him and his dose was lower than on these sites. So I asked for higher. I wish I could take spiro, but it upsets my stomach horribly. So I’m going to Redmond. I should have gone in January. I can’t believe this is happening to me. I’m sorry I’m rambling. 

My hair started thining out this past year. I notice my hair falling out when i got pregnant with my son. I got diabetes with my pregnancy. my scalp itches and it hurts. It feels like i had my hair tied up so tight and let it go. it hurts to move my hair. i saw a dermatologist and said it was due to the stress of child birth. it has been over a year and is still falling out. has anyone heard of this and what i can do. My Pcp check my hormone levels and said everything is fine. I need help.
The trick about all of these hair-loss products and treatments is that they’ll stop working as soon as you stop using them. “They have to be ready for a lifetime commitment,” says Rieder. But, just like brushing your teeth, as long you keep on keeping on with the scientifically proven preventative treatments, those hairs on your head should be just fine.
Kimberlyn’s story sounds a lot like mine….I used to have straight fine silky but thin hair…Then suddenly it turned into coarser, squiggly textured hair, and was falling out…I would hate to wash my hair because so much more would come out in the comb after washing. I had hair on my pillow, in my bed sheets, I would find hair just hanging out of my other hair, just waiting to fall out so I would grab it, and 4-5 strands would fall out…then comb with widest tooth pick I could find, and more came out..Hair would be on my arms during the day, just falling at will from my head…Now my used to be thin hair anyway is totally thinning, crown, all over thinning, hairline, nape of neck…I am so over it. My reg Dr said stress…I have OCD and do stress a lot, but I don’t feel it is due to stress as I have been this type of person all my life…and didn’t lose hair like this..I asked gyn, no response. I felt it was my thyroid, as I am in a high normal range, and really don’t like that, but don’t know what else to do as DR feels it is OK. I don’t have insurance so cannot afford to go to 10 different Drs. and still get nothing for a definative answer or solution. I take vitamins always, biotin, zinc, and have just started with Nioxin, just to make my scalp maybe healthier . I know it doesn’t “grow” hair, but maybe I can keep what I have left. I am 59 so lots of symptoms are same for thyroid, post-menopause, and just don’t know what the answer is. I have been researching wigs endlessly in case that is the only hope I will have. I live in Florida and wear a baseball cap everywhere I go…how can one dress up and feel good about themselves, and have to put a baseball cap on to cover the hair loss and protect against the sun on my scalp??? I am at a loss…No one seems to have any answers for me….

The main symptom of alopecia areata is hair loss. Hair usually falls out in small patches on the scalp. These patches are often several centimeters or less. Hair loss might also occur on other parts of the face, like the eyebrows, eyelashes, and beard, as well as other parts of the body. Some people lose hair in a few places. Others lose it in a lot of spots.
Our other recommendation is the HairMax Ultima 12 LaserComb. The comb uses low-level lasers to stimulate hair follicles and modulate dihydrotestosterone (DHT) — a hormone that causes the most common type of hair loss. While it sounds like something from a sci-fi movie, the treatment works, and the dermatologists we consulted reported that their patients saw thicker and longer hair when combined with our top pick. The only catch: The comb isn’t as effective as minoxidil treatments, and at nearly $400, it’s a much bigger investment. Still, it’s the best option if you’re looking for a non-invasive, non-chemical treatment.

When alopecia areata is associated with celiac disease, treatment with a gluten-free diet allows for complete and permanent regrowth of scalp and other body hair in many people, but in others there are remissions and recurrences.[15] This improvement is probably due to the normalization of the immune response as a result of gluten withdrawal from the diet.[15]
The complex actions of genetics, DHT, shifting of hormone ratios and age-related volume loss can commonly occur in women in their 40’s and 50’s. However, just like in men, genetic hair loss can appear at all ages after puberty.  In fact, hair loss occurs with relatively high frequency even in women in their 20’s and 30’s. The majority of women with female pattern hair loss initially develop diffuse thinning over the front and top of the scalp, while maintaining the frontal hairline. This thinning may present with a widening through the central part line while others may present initially with either episodic or continuous hair shedding, prior to any noticeable decrease in hair volume. In addition, thinning may also be seen throughout the scalp, including the temple areas as well as the back and sides.
Also, re: the Proscar, I think that it may already be helping some as I think my shedding may be tapering off a bit more. I am losing a few less hairs Per day now. Maybe? I don’t know, but I am trying to stay positive!! I have no real regrowth. Just wisps, extremely fine hair, almost hard to see. Kind of transparent. I am not expecting miracles, but trust me…. THe moment I feel I have any true results to share with you girls, I will definitely be posting them! There aren’t many success stories out here. We need more. I guess people don’t come out here as much if they are experiencing good things w their hair?
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