Graccey, you are spot on with the PPD allergy. It is amazing how difficult it is to connect the dots. It took me a year to figure it out. It caused 2 very aggressive cases of TE, my hair is not coming back on it’s own. I have been using Johnson and Johnson baby shampoo (I put one baby aspirin in it to balance the PH level because it is very alkalinity and the baby aspirin is an acid that brings it down, a lot of research to figure that one out too, but I just put the baby aspirin in an ounce of filtered water to dissolve and pour it in the baby shampoo) but anyway it was the only thing I wasn’t sensitive to and yes you are right it is something that continues to progress and makes you sensitive to all chemicals. I went a year without coloring my hair to allow it to rest. And now I will only foil it leaving 1/2″ of roots showing. This has devastated me beyond. I have just started using rogaine and the hairmax comb (for scalp health) I don’t think the comb helps with hair regrowth but it does seems to help with scalp health. It is a miracle I can use rogaine but it does seem to be helping. I use the women’s 2% every other night. Good luck with your regrowth. You are right on with the PPD and I think it is much more common than people think!

Hi Everyone I thought I was the only person with major hairloss because everywhere I look all I see is beautiful heads of hair. I am 34 years old and my hair started thinning 7 months ago at first I thought it was just my ponytail getting thinner but my hair became horrible with split ends and dryness too (I have always had extremely healthy hair and never had split ends) – I thought I had burnt my hair using a straightener and that’s why it was thinning. However it has gotten worse and worse and I finally visited a doctor. I have had full blood tests for thyroid issues, hormone levels, cholesterol etc etc all were perfectly normal, I had a thyroid antibody test which was at the high end of normal but still within normal range, I had a thyroid function test which was within normal limits however he thought I did have some slight inflammation ie thyroiditis. My doctor said this isn’t causing the hair loss either. I have loads of energy, don’t get tired, eat well am normal weight range the only other thing I have noticed is my eyelashes seem stunted in growth (not thinned out though) and my eyebrows have thinned on the outer edges. My last two nails on both hands have a dark (looks like they have lifted slight) strip just below the white nail part. I am booked to have a stress test, pelvic ultrasound and to see an endocrinologist also to rule out all other possible reasons for hairloss. I am now getting to the point of embarrassment to go out it is soooo thin on top particularly on one side of temple and majorly down the centre where I used to part my hair. HELPPPPPP!!!!!
Rogaine’s foam squirts out just like hair mousse and is applied with “cool, dry hands.” Applying means working the foam down to the scalp where you want to see thicker growth — for it to work, “it has to get into your scalp,” Dr. Wolfeld explains. “If it sits on your hair, it’s not really as effective.” Once massaged, it dissolves into a watery liquid that leaves a tingly sensation, “but no burning!” one of our balding testers was happy to discover.
when i was 24, went to so. america to visit family. they hadn’t seen me since my last visit, which was when i was 17. there was a guy who i had liked and hung out with when i spent my 17th summer there and was excited to see him once again, “as an adult”. i think it was the second day or so of hanging out with him when he says to me: “hey, i noticed you’re losing your hair”. i was beyond embarrassed at that moment and all i could muster out was, “yeah, i know”. thanks for pointing it out there buddy. next came anger mixed with that embarrassment. i felt, and still feel, that people stare at my head and notice my thinning hair when they are talking to me. when i came back to the states a few weeks later, the first thing i did was make an appt with my pcp. she referred me to an endocrinologist who found my testosterone level slightly elevated. it was in the 70 range. i didn’t have masculinization going on so she told me she didn’t want to put me on medication and to return if i noticed in increase or changes in symptoms.
No one wants to lose their hair, but for women it is especially traumatic. Men can shave their heads and look hip, even sexy. Most women don’t want to be bald. Though it is more common — and visible — in men, many women lose their hair. According to the American Academy of Dermatology, 30 million women in this country have hereditary hair loss, compared with 50 million men. But many additional women experience thinning hair that results from menopause or health problems.
The pattern of hair loss, especially whether it is focal or diffuse, also may be helpful (Figure 1). The hair-pull test gives a rough estimate of how much hair is being lost.2,4  It is done by grasping a small portion of hair and gently applying traction while sliding the fingers along the hair shafts. Usually one to two hairs are removed with this technique. The hairs are then examined under a microscope (Table 2).
I’m 26 and started losing my hair (in the course of about a month) one year ago. I’ve seen three doctors about it. The General practitioner just pulled my hair and said it looks like my hairloss had already righted itself. Well, I didn’t believe her. So I went to a derm and he said he saw little regrowth hairs so it was just temporary hairloss and if, for some reason, I haven’t regrown my hair in to a noticable length in a year to come back to him for more bloodwork. (I had gotten my thyroid checked in my yearly physical and they said it was just slightly elevated . However, they told me this was not enough to put me on medication that they would check it again in one year) It has been one year and I think my hair is actually getting thinner. I’m just panicking. I’ve always had thick, straight as a board hair like another woman on this post had said, and now it is very thin, breaks easily and is ‘kinky’. I don’t understand why its kinky, why would my really long hairs that took years to grow now start to be damaged and kink when they fall out? I never got split ends, I never had short hairs fall out and when my hair did fall out in its normal pattern it would always fall out in one long, straight, thick strand. Does this mean I have a miniaturization of my follicles that has been going on for years? That maybe my hair strands are growing back thinner? I agree with another girl on this site that said she feels like there is no hope now. I was assured by my derm that my hair loss would not get worse. This helped me to cope a bit because instead of looking like someone with thick hair, I just had to look like someone with thin, wispy hair. I thought maybe I could deal with that, as long as I didn’t have to go bald. Well as much as this site has encouraged me in that ‘misery loves compay’ I now see that there are very few solutions and left untreated it can make us bald! I might also mention that I was never on birth control, and have no idea why I just suddenly started losing my hair. However, I have always had PMS and heavy periods. I guess I just want to know, is this for sure a problem with my hormones? Is it because my thyroid is slightly elevated? Should I even bother going to a doctor anymore? How can women as young as 18-30 be getting this problem? I guess I just am in that panic mode, where I really just want some reassurance that the odds of this getting better are good. I’ve past that one year mark of when I’m supposed to know if it was temporary or not and so now that sense of panic is renewed. Is this just going to keep getting worse? What do I do!? I hope some of you have some comments that could help me out. Thanks for listening to me rant. 

Topical immunotherapy (i.e., contact sensitizers) is the most effective treatment option for chronic severe alopecia areata (Table 5).6 Response ranges from 40 to 60 percent for severe alopecia areata, and reaches approximately 25 percent for alopecia totalis and alopecia universalis.6 Because of potentially severe side effects, only clinicians who have experience with these agents should prescribe them.
Onion - A study published in the Journal of Dermatology examined the results when onion juice was used in people with alopecia areata. Twenty-three people applied onion juice directly to the scalp twice daily for two months. Participants began to experience hair growth after just two weeks of treatment. At four weeks, hair regrowth was seen in 17 people and at six weeks, hair growth was apparent in 20 people.
I’m 55.. gee, had to count with my fingers, lol~ but since I had started puberty I started losing my hair. I managed through the difficult years of Junior High and High school (2 college yrs) by having perms done. The many different ways of trying to cover it. At 14 being told its male hair baldness was pretty much saying nothing you can do. All my life I stayed away during the day time, or with hats, I even worked nights. Tried many items, then later in life diagnosed with PCOS, which makes sense, why would a young girl just starting puberty start going bald. My siblings had too much hair, my sister looked like Bernadette Peters, with twice the hair. About 4 yrs ago a life long friend, called me at 2 am, said turn on HSN, I did, and it was a color fill in~we both purchased it and I absolutely love it! I look normal enough to walk past you, just don’t stare too long, lol, its called Truhair by Ashley Scott. Cant be without it. I use the Rogaine womans 5%, this helps my hair from keep falling, use it every night before bed, I take 5000 vitamin d and 10,000 biotin~ I wish I had these items back when I was teenager, would have saved me decades of embarrassment and heartache. My bald spot/thinning spot looked like a monks cap. I feel the best I have in many, many years. My 23 yrs. daughter had 3.7 ovarian cancer, spread everywhere and she survived, but now..after her 5 yrs remission, she started losing her hair. I feel so horrible for her. I know its from chemo and she ended up having a full hysterectomy, and I’m trying to get her to see a Endorinologist, as I’m sure with hers its her hormones. I finally also gave this affliction to our Lord and the thinning has decreased significantly ! I’m going to keep praying! and also praying for a cure ! the torment of losing your hair is real and devastating.
For the first time in my life also, I have been experiencing a lot of scalp pain. I think it is because this time, it is not slow and diffuse like it was in my teenage years, at the onset of PCOS. Quitting the pill after 5 years of dependency meant a major hormonal shock to the system which provoked both a mix of both Telogen Effluvium (shock loss), and Androgenic Alopecia (the testosterone from the PCOS back in full form, killing hair follicles).
The topical sensitizers, diphencyprone or squaric acid dibutylester, have been used in those suffering from recalcitrant alopecia areata or those with more than 50% hair loss. The goal of treatment is to create an allergic contact dermatitis of the scalp. This alteration in the immune response occasionally is accompanied by hair regrowth. The efficacy of the topical sensitizers has been demonstrated in both young children and adults, but it probably works less than half the time. Recent success using oral janus kinase inhibitors, including tofacitinib, ruxolitinib, and baricitinib, have been shown to be efficacious in severe, extensive alopecia areata in adults, but long-term therapy has potential side effects. The durability of response to these medications is variable, and most patients experience recurrence of hair loss after discontinuation. Perhaps topical therapy with these types of drugs may be available in the near future.
Just found this site today and want to thank everyone who is sharing. I don’t have the words for how devastated I feel about losing my beautiful, beautiful hair. Thank you for the information and fellowship here. I have a wonderful internist, but she hasn’t been able to help, (been dealing with PCOS for 12 years now and severe hair loss since Feb 2008). Will be looking for an endocrinologist and a dermatologist now too. Hope I can give back some day with good news.
I have not heard anyone talk about the “HairClub” use to be a center called the “Hair Club for Men” but now seems to also be catering to women. I had a consultation last week and the consultant looked at my scalp with an instrument that showed my scalp on a screen, she performed a microscopic hair and scalp analysis. Of course I really needed to see my scalp magnified a trillion times and seeing both thick and thin hair and of course all the empty spots where hairs use to be. She was very informative and showed me the cycle of healthy hair and also the ones that are not and how they thin and eventually fall out and the hair follicle closing. Their pamphlet show women with different stages of hair lost, from patches to almost bald. She explained that there was hope and that with a yearlong regiment of going once a month and having my scalp treated with their products and some sort of scalp stimulation I can get my hair back. Of course this comes at a price, almost 3k for the year. She did say that the monthly regiment will include hair styling as well. woohooo. Anyways I want to know if anyone has been to one of these Hair club facilities and if they have had any success with the personalized program without having to resort to surgery. My prayers go out to all of you.
One day in my mid 20s I got feed up with my at that point frizzy hair. I took a close look at individual hairs. I almost had a heart attack. Again this thought:”NOT NORMAL!!” I had tons of KINKY, ROUGH, even ZEBRA-STRIPED hair!! Much resembling pubic hair. The striped hairs were few, but they were literally striped in the darkest shade of brown I have & white!

My hopes and prayers are for all of us… that somewhere a doctor, an organic chemist, SOMEONE… ANYONE… will care enough to actually research this. Thank you, all of you, for your tears, suggestions and sharing. I WILL NOT WEAR A WIG… WHAT LIES BEHIND US, WHAT LIES AHEAD OF US, PALES IN COMPARISON TO WHAT IS INSIDE OF US. WE ARE STRONG, VIBRANT… WE WILL PREVAIL.
As the name suggests, androgenetic alopecia involves the action of the hormones called androgens, which are essential for normal male sexual development and have other important functions in both sexes, including sex drive and regulation of hair growth. The condition may be inherited and involve several different genes. It can also result from an underlying endocrine condition, such as overproduction of androgen or an androgen-secreting tumor on the ovary, pituitary, or adrenal gland. In either case, the alopecia is likely related to increased androgen activity. But unlike androgenetic alopecia in men, in women the precise role of androgens is harder to determine. On the chance that an androgen-secreting tumor is involved, it's important to measure androgen levels in women with clear female pattern hair loss.
Interesting reading all the stories, I had great hair until 15 years ago,and then the texture of my hair drastically changed. It be became “dead hair” wirery. I call it it my chicken feathers just taking its time to fall out which it has done over a long period of time, but I now have bald spots on the sides and thinning in my bangs. I started buying wigs years ago knowing that this was something that was inevitable. I’ve had all the tests and tried all the products, nothing..just curious if anyone else has had the “dead hair” issue

Finasteride inhibits an enzyme that converts testosterone to DHT, or dihydrotestosterone, the hormone that causes hair loss in men, and unlike minoxidil, this drug can actually help hair grow back, as well as prevent further loss. All you have to do is take one pill a day, and according to Dr. Evan Rieder, dermatologist in the Ronald O. Perelman Department of Dermatology at NYU Langone Health, two-thirds of men taking this treatment will see improvements in hair density over time.
Ironically, taking the hormone levothyroxine to treat an underactive thyroid can contribute to some hair loss, among other side effects, but this seems to be more common within the first month of treatment and more often in children than adults. This hair loss is only temporary and will go away as treatment is continued and thyroid hormone levels stabilize.
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