I too visited the infamous-overpriced Dr Redmond from NYC. I’m on spiro and all the meds for 7 months, going on 8. Forget regrowth, forget halting of shedding, the rate of hair shedding refuses to slow. (I’m also certain its PCOS and not lupus that causing my hairloss, thoroughly medically investigated my hairloss. ) At the start of my treatment, I cut my hair to bout 5 inch lenght, so I’d easily be able to tell thinning versus halt versus regrowth. And all I can say is, I have less hair than I started with. Unfortunately even a physicians intervention is incapable of helping me. To all those out there, atleast this approach before scratching it off your list, its the least you can do.
I’m a dermatologist and am more interested in telogen effluvium these days because I have it bad–and this time it’s not because I just had a baby. I’m learning more about the gut-skin-hair connection and am suspicious that it has to do with the bacterial flora in your gut. You can learn more about changing your gut flora at BodyEcology.com. Her book is intense but I’ve decided to give it a try after recommending it and seeing it work so well with acne patients.
Susan – I am horrified to read that two of your doctors actually made fun of you… oh my gosh that is awful! I’m so sorry you had to go through that. I am also surprised that your doctors wouldn’t do any bloodwork other than thyroid. What City/ State do you live in? Maybe someone can recommend a doctor in your area that would be more helpful. While many times bloodwork results end up coming back normal there is that possibility that your results would point to something that may be the cause of your hair loss, especially since you say you have no genetic hereditary hair loss in your family. I know you stated your hair is still falling out, but do you see any results from the propecia and mens rogaine? When did your hair loss start?
Many medical conditions can cause hair loss, with thyroid disease a common culprit. Thyroid problems include both an underactive thyroid gland (hypothyroidism) and an overactive thyroid gland (hyperthyroidism). Because hair growth depends on the proper functioning of the thyroid gland, abnormal levels of thyroid hormone produced by this gland can result in hair changes, along with many other side effects, if left untreated. When there is too much thyroid hormone, the hair on your head can become fine, with thinning hair all over the scalp. When there is too little of this hormone, there can be hair loss, not just on the scalp, but also anywhere on the body.
I’m so glad I came across this site. I’m 41 and started to lose my hair in Aug 2011. It started out as two bald spots in the back near the hairline. I went to a Dermatologist who started me on steroid injections, Topicort, and hair, skin and nails vitamins. After a few months, they didn’t seem to help. I went to my Internal Medicine md. He ordered all types of blood tests, $4,000 worth, which all but my Vitamin D came back normal. I started a Vitamin D supplement. He suggested I live my life and be happy. I then went to an Integrative Medicine md, who ran more blood tests that came back normal, urine tests that came back normal, and had me do a GI Repair Kit. I even tried going gluten free. I take a multivitamin, Omega 3, B Complex, Vitamin D 10,000 units, and hair, skin and nail Vitamins. I’ve cut out fast food and processed food. Drinking lots of water. Not exercising like I should. I began to gray in my twenties and have been dyeing my hair for years. The Dermatologist told me it didn’t cause the hair loss. I went months without dyeing my hair just to see if it would help. Nothing has helped or stopped my hair loss. I have now lost most of the hair in the back and on the left side over my ear leading to the front. A month a go I noticed a huge bald area on the right side in the front. I have been so depressed and self-conscious about my hair loss. I have been staying in the house and avoiding gatherings for fear of someone noticing. After spending lots of money and not getting any answers, I feel so helpless. I purchased a wig, but since my remaining hair is long and covers the bald areas, I haven’t started wearing it yet. It is a comfort knowing that I’m not the only one going through this. People don’t seem to understand. I know I’m not my hair, and my hair doesn’t make me, but it is a very traumatic thing to go through. I’ve decided to take my Internal Medicine md’s advice and to just live my life. I can’t continue to be depressed over something I can’t control. I wish everyone luck and I will continue to follow.
There is no cure for the condition.[2] Efforts may be used to try to speed hair regrowth such as cortisone injections.[1][2] Sunscreen, head coverings to protect from cold and sun, and glasses if the eyelashes are missing is recommended.[2] In some cases the hair regrows and the condition does not reoccur.[2] In others hair loss and regrowth occurs over years.[2] Among those in whom all body hair is lost less than 10% recover.[5]
Hello all. First, I would like to say that this site is absolutely amazing. I have never felt so touched in my life. I too suffer from hair loss. I cannot really say what the cause is because I have never been properly diagnosed–still searching for answers. I have been to many doctors and have had many blood tests only to get back normal results (which I guess is good) but how can this be? What really amazes me is when I discuss may hair loss with my doctor, whom ever it may be that day –Endo., Derm., GP., they never seem to really want to help or maybe they just don’t know. I have spent so much money on so many different doctors and it is as if they all go by the same book. Where does one go to seek answers? It really is a sad situation. I believe that all the doctors that I go to must be going through the same type of training and education. Maybe I need to go to a doctor that just got out of med school and hope and pray that he/she learned something new instead of the norm–Purchase Men’s Rogaine….Jeez.
I’m 42 and I noticed my front top and sides thinning about a year ago – a lot coming out when brushing after washing. I went to the doctor who happened to be African-American (I’m caucasion) and she actually asked me if I wore “corn rows” a lot! Needless to say, she was worthless and just prescribed me something for dandruff, which I do not have! I went to an endocrinologist to see if my thyroid or menopause was the problem – tests turned out honky dorie! Now I can see through the top of my head when the sun shines on it (scar-y) and I’m having to cover over the temple areas with sweeps of hair from the other side (interesting, the right side is much thinner). I will say that I’ve gone through hell and back with a mentally ill young adult but if it was stress, wouldn’t it have come out quicker than just in the last year (I’ve been dealing with his illness for 7 years now)?? I’ve heard that sometimes it takes 2 or 3 blood tests and doctors to finally see that one has thyroid problems. Is this the experience of others, and would I be throwing my money away by seeing my general practitioner?
It is perfectly normal for people to shed 50 to 100 hairs per day. This generally doesn't cause noticeable thinning of scalp hair because new hair is growing in at the same time that hair is shedding. However, hair loss occurs when this hair growth cycle and shedding is disrupted or when the hair follicle becomes destroyed and replaced with scar tissue. Female pattern hair loss (androgenetic alopecia) is the most common form of hair loss in women. This occurs gradually and is caused by genetics (from either side of the family), age, and the action of a specific male hormone, dihydrotestosterone (DHT). This hormone is found in lesser amounts in women and it preys on the hair follicles, preventing them from receiving vital nutrients for proper hair follicle growth, leading to the hairs shrinking, and resulting in a shorter lifespan. Interestingly, DHT does not need to be elevated to generate hair loss. Estrogen, when lowered as commonly seen in menopause, creates a change in the ratio of male to female hormones, giving an edge to these male hormones. Compounded with the sensitivity of DHT to the hair follicles, heredity can affect the age at which a woman begins to lose her hair, as well as the rate of hair loss and the extent of baldness. 
Rogaine’s foam squirts out just like hair mousse and is applied with “cool, dry hands.” Applying means working the foam down to the scalp where you want to see thicker growth — for it to work, “it has to get into your scalp,” Dr. Wolfeld explains. “If it sits on your hair, it’s not really as effective.” Once massaged, it dissolves into a watery liquid that leaves a tingly sensation, “but no burning!” one of our balding testers was happy to discover.
Protein: When the body does not get enough protein, it rations the protein it does get. One way the body can ration protein is to shut down hair growth. About 2 to 3 months after a person does not eat enough protein, you can see the hair loss. Eating more protein will stop the hair loss. Meats, eggs, and fish are good sources of protein. Vegetarians can get more protein by adding nuts, seeds, and beans to their diet.
I would just like to spare anyone else In Los Angeles thinking about going to see the dermatologist who supposedly specializes in hair lossat UCLA (Dr Strick or something like that I think is his name) He is the most insensitive and uncaring Dr. I have ever met. After waiting close to 2 hours after my scheduled appt to see him. He gave me some xeroxed copy of an article on T E that was out of Glamour or Cosmopolitan or some Fashion magazine like that. He asked no questions. I wasnt even there for 10minutes but when I showed him a big bag of hair which I saved, that had fallen out in the past several weeks. He just very insensitively told me it was T E and it would grow back-basically like just get over it, then he gave me the bums rush out the door.
I am 20 and have been losing hair since I was 17. It is such a confidence killer. I really do miss my beautiful thick and black hair. Now my hair is thin and a bit gray as well. I only think of it sometimes…but I used to be so depressed i can barely get out of bed. Whenever I am talking to someone, I always wonder if they are looking at my hair. I am currently using Rogaine for Women…it worked one summer when I was following the regimen religiously. However, I am so bad with routines, so now I try to remember to put it on my scalp morning and night. I recently also started to take Shen Min Hir Nutrients…not sure if it works yet. Does anyone have any advice? I really want to get a hair biopsy but I don’t know how. The places I called offered scalp analysis to prepare for hair transplants…which is not something that I am considering. I also saw 2 derms, one didn’t know what was wrong and only offered Rogaine as a solution, and the other said it is androgenic alopecia. I think I might have hormonal problems, but really not that sure. My scalp is always oily and so is my skin. Before my hairloss, I had really itchy scalp. Now it’s still oily but I wash it every other day. I also dye my hair to hide the gray. Sometimes I just feel so ugly and depressed in thinking about my hair. Beautiful hair is the only thing that I want back.
Blow dryers, flat irons, and other devices: Frequent use of a blow dryer tends to damage hair. The high heat from a blow dryer can boil the water in the hair shaft leaving the hair brittle and prone to breakage. Dermatologists recommend that you allow your hair to air dry. Then style your hair when it is dry. Dermatologists also recommend limiting the use of flat irons (these straighten hair by using high heat) and curling irons.
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I live in Orlando. I understand your panic. How old are you? Are you in menopause or peri or is it purely hair loss not horome related? I have been to a dermatologist I traveled 2 hours to another city. I’m like you, desperate and going from doctor to doctor. It’s a nightmare and I’m losing more hair all the time. Where are you losing your hair? on top? Is it diffuse? I feel like I’ve wasted so much time. I felt in November it was menopause related. I went in Menopause early 40s. wasted months on HRT since January and hair worse on top. I felt like I was in a nightmare and nobody understands. You truly don’t want to leave the house. I went to derm specializing in hair loss. He did biopsies. Female pattern hair loss on top. Folicullitis in back. I had even had hair fall out around nape of neck. But he just basically said nothing. I was waiting for biopsy to come back and more blood work and I said can’t I take something. He said you’re not going to lose any in two weeks. I’m like are you kidding me? every week is another nightmare. Anyway he says take spiro 50 mgs, use Rogaine. Even I know from these blogs you need to take 100 to 200 for female hair loss. Basically I go back and he says hair transplant. Did I mention he does hair transplants. So he does nothing beyond diagnosis except offer hair transplant. I’m like My hair is falling out all over. I need to get it stabilized first. sorry I’m rambling. I’m using rogaine foam. It makes me feel good to use it as if I’m doing something. Been on a month almost. Now just went on finasteride, but jury is out if that will help. But even that I asked for from him and his dose was lower than on these sites. So I asked for higher. I wish I could take spiro, but it upsets my stomach horribly. So I’m going to Redmond. I should have gone in January. I can’t believe this is happening to me. I’m sorry I’m rambling.
Interesting reading all the stories, I had great hair until 15 years ago,and then the texture of my hair drastically changed. It be became “dead hair” wirery. I call it it my chicken feathers just taking its time to fall out which it has done over a long period of time, but I now have bald spots on the sides and thinning in my bangs. I started buying wigs years ago knowing that this was something that was inevitable. I’ve had all the tests and tried all the products, nothing..just curious if anyone else has had the “dead hair” issue
I am 43 and I have been thinning/losing my hair for the past four years. It is so upsetting. I know very few people who can relate…until I came across this site. Has anyone tried apple cider vinegar? I read that it can help with hair loss, but I am skeptical, as all of the remedies I’ve tried thus far have been disappointing. I try to put my hair loss situation in perspective, but I’m not always successful. Best wishes to all of the women on this site. I hope hair restoration is around the corner for all of us.

i am a mother of a 10 yr old beautiful daughter who at this moment has started to lose some hair on her eyebrows.. at first i thought it was just skin disorder because it started out as an round and whitish spot on her left eyebrow…and only applied ointment on it. but then i statrted to notice that her eyebrows are have seen to not look normal and both end of her eyebrows are gone … and so i immediately took her to a dermatologist and with just one look at her through a lighted mirror ( i think) she told me – its alopecia.. due to stress, – that really shocked me…she’s a happy ten year old girl.. attending grade school.. she’s my only child … day and night we are together..so i am very secured in knowing that if she has any problem in school or with her friends – she would tell me as she always does.. and then the doctor showed me pictures od bald older men and told me that sometimes _ alopecia showed itself in men’ s mustaches.. sideburns… etc. then she gave us a prescription for an ointment to use on her brows 2 x a day and get back at her after two weeks.
You ARE the same inside, but you are also different… you’ve been through a lot and it is so difficult to to stay strong through this experience. I won’t even go into the hair stuff, because it sounds to me that this is not what your post is about. You need to get some really solid support and find something other than your hair to focus on. You need an awesome hair system…and support system. From there, I hope and pray for you, that you will be able to find happiness and balance in your life again. You are a glorious human…don’t doubt that for a moment! 

The pattern of hair loss, especially whether it is focal or diffuse, also may be helpful (Figure 1). The hair-pull test gives a rough estimate of how much hair is being lost.2,4  It is done by grasping a small portion of hair and gently applying traction while sliding the fingers along the hair shafts. Usually one to two hairs are removed with this technique. The hairs are then examined under a microscope (Table 2). 

This blog is great in all the support and understanding it provides, but I had a pretty hard time finding any suggestions for treatments that have actually helped anyone. I’m 22 and my hair has been rapidly shedding over the past 5 months. It’s also gotten thin and brittle. After 2 blood screenings, a dermatologist visit, and a visit to my general practitioner, nothing has improved. The doctor’s told me to wait it out, and that sometimes this “just happens”. They tested my hairs and saw that most of them were in the “resting” telogen phase, and decided I had Telogen Effluvium (TE) for undetermined causes.
Evaluating and treating hair loss (alopecia) is an important part of primary care, yet many physicians find it complex and confusing. Hair loss affects men and women of all ages and frequently has significant social and psychologic consequences. This article reviews the physiology of normal hair growth, common causes of hair loss, and treatments currently available for alopecia.
in between all these years, i also tried some homeopathic methods. i read dr. andrew weil’s book on health and used to take 2000mg of alpha-linolenic acid either by evening primrose oil, grapeseed oil or borage oil. it didn’t regrow my hair but i do feel that it helped stall it. only problem is that after a year or so it stopped working for me, but it may help some of you out. there’s a connection, according to dr. weil, between alpha-linolenic acid and hair. i’ve also used homemade rosemary water and washed my hair with it, but it only helps with making me smell like the bush it comes from.
Laser devices: Brushes, combs, and other hand-held devices that emit laser light might stimulate hair growth. These devices might make hair look more youthful in some people. Because the FDA classifies these products as medical devices, the products do not undergo the rigorous testing that medicines undergo. The long-term effectiveness and safety for these devices are not known.
Leprosy (Hansen's disease) is a disfiguring disease caused by infection with Mycobacterium leprae bacteria. The disease is spread from person to person through nasal secretions or droplets. Symptoms and signs of leprosy include numbness, loss of temperature sensation, painless ulcers, eye damage, loss of digits, and facial disfigurement. Leprosy is treated with antibiotics and the dosage and length of time of administration depends upon which form of leprosy the patient has. 
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